please could someone in the medical proffesion please answer this question for me?
Posted in Contributorsi am polysymptomatic numerous illnesses i have chronic fibromyalgia,severe,anxiety,i’v had 2 cardic arrests i’m 31 i have diverculosis,zollinger ellison syndrme,gastric osophical reflux,underactive thyroid gland,adenomiosis,endometriosis,pernicious anaemia i was bed bound for months due to the pain from the fibromyalgia, so the doctor put me on several different strong drugs as tour tollerance to them is extremely high in fibromyalgia due to the excessive pain i was on fentanyl actiq lozenges at 1600mcg 8 times per day 100mg of diazepam,60mg of temazepam,zoton fast tabs,cyclizine,thyroxine,and the femedene pill taken with no breaks for the endometriosis vit b12 injections this probably seems deadly to you but i could function normally pain free on a regular basis because the doctor was getting so much stigma attatched because of it i volunteerd to drop mydosage and get off the lozenges so now i,m on 90 mg of diazepam 20 mls of oramorph/ 40mg vit b12 injections zoton fasttabs thyroxine femedene taken constantly the oramorph upsets my stomache because of the alcohol content i cant tollerate alcohol i did drop the lozenges very quickly and substituted it high doses of morphine that as you can see but it was still extremely difficult my doctor says i was pain free on the lozenges because of the anaestetic and magniesium plus the fentanyl but the fentanyl is addictive now i am reverting back to my old state and feel i’m going to be bed bound again well i know the pain is intollerable is there any other medicines for fms i have tried most anti depressants and natural remedies is there any other muscle relaxants as i have had to change doctors due to a move and the other doctor wants to take me off everything with no replacement if he does that i might aswell be dead so i’m seeking help elsewhwere i think my body kills off the tablets b4 they enter my bloodstream because of all the stomache acid or i bring them bk up is ther a medicine that contains anaestetic without the fentanyl ?also do you think there is something more sinister behind all these illness i had septaceamia and was suspected to have lupus and lymes disease but they put a question mark to this they also think i have problems with my endocrime system inc my adrenal glands please please help and try to shed some light on this as no one seems to either cant or wont help i’v asked for an advanced blood screening to break everything down my hormones all that stuff and i’m still waiting to get the bloods taken if you can help i will be sooooo grateful thanks cat
my punctuation would be fine if i wasn’t in so much agony i feel sorry for your patients if you was doctor you would have answered truthis yoo many big words 4 u you try typing with pain at a ten punctation has nothing to do with you just dont know the answer how uncompationate are you ?
we didn’t all go to eaton dont you treat patients who cant fill there prescription in to because maybee they was not blessed with a good family and education arrogant get go on take the mick guess there’s just no doctor clever enough to answer me?
thanks isabelle for taking me seriusly can you believe a doctor wont answer my question coz of my punctuation i’m in agony there’s a chance i’v got bone marrow cancer too how malicious some peiple can be on here shocks me thanks again i appreisiate it cat x
thaks for your answer angela but i’m allergic to amitriptaline also anti inflamitories fibromyalgia gives you a very high tollerance the substance p that saturates your spinal cord sends messages telling your brain your constantly in pain so it’s not just when you hurt yourself it’s constant and causes blood vessel and muscle and ligament damage i really appriesiate your anser some points i think are very true i think its getting alot worse
THANKS YASIE YOUR SO WISE FOR 12 YOU’L GET A THUMBS UP 2 XX
HI CAZ THANKS FOR YOUR ANSWER BUT THE DRUGS MANED AT THE TOP I’M NO LONGER ON I; ONLY ON DIAZEPAN AND 20MLS OF ORAMORPH NOW PLUS MEDS FOR OTHER ILLNESSES NOT ADDICTIVE ONES THOUGH THANKS FOR YOUR ANSWER THOUGH CAT XX
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Posted: November 24th, 2009 at 1:00 pm |
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November 24th, 2009 at 1:01 pm
hi
i am a doc
basically a neurologist i will try to answer the question
after having gone through your history all my sympathies are with you and this is the first time i ever come across some one with such huge medical conditions i am really concerned about your health
however after going through your prescrioption i have not any more thing to offer but have your tried gabapentin or any of its new product. secondly have u tried TENS therapy
,
second injection therapy in the tender points do work and i have tried in few of patients , not to mention it work in one of my female patients like a miracle
however i must add at the end y need to be examined by a board of doctors and then a team effort be done to help u
my prayers with u
November 24th, 2009 at 1:01 pm
I am not a Dr, but Wow! I don’t know if you are seeing just one Dr and Pharmacist, or are seeing different Dr’s and getting your prescriptions filled at various pharmacies. I think you need to take all your medication in, go over them with your main Dr, and get a full complete physical - you could be mixing stuff that shouldn ‘t be mixed, or taking a medication that counteracts others. That happened to my father and it just made everything worse, there were 3 medications that he was taking that shouldn’t be taken together, he got the problem solved, and did feel better
November 24th, 2009 at 1:01 pm
You’re quite hard to understand but i will answer the bits i can..
No, tablets will not be killed off before they enter your blood stream no matter how your stomach is, they are meant to work like that and that effect is taken into consideration when they are made. You are on antacids anyway so the answer to that bit is no. There are other possible reasons why you are not getting the full benefit from your tablets now- either you have built a tollerance to high doses or your condition has changed or worsened.
I am not a doctor, i am an ambulance clinician but i do deal with patients own drugs and prescriptions and the one drug that springs to mind that you haven’t mentioned is amitriptyline. It’s an antidepressant/anti anxiety drug that is also used for neurological pain and could maybe be used in combination with your current painkillers at a lower dose or a completely different one, for instance tramadol.
I do understand your frustration, i see this kind of thing all the time and i am going through a hard time with my own health at the moment and it makes you lose faith in the doctors you’re dealing with but i do also see a point in what your doctor says about stopping all your meds too. Then he or she may be looking at trying more conservative measures with different meds maybe one at a time to see if a different combination or approach will help. Just try it and maybe suggest what i thought because it does sound like you’ve got nothing to lose.
I’d also strongly suggest some councelling for relaxation and stress control because anxiety and depression raging like it seems it is in you can cause or worsen a lot of pain.
Good luck
November 24th, 2009 at 1:01 pm
Im not a doctor or anything I am only 12 but I can see you are in serious agony and take well advice from people also go to another hospital if the doctor you were wityh didnt help
if you didnt go to a hospital i think it is time you should
i am feeling very sorry for you but thats all i can do
just go to the hospital today or because its bank holiday go to emergency and explain how serious this is
i really do hope you get better
byee xx and good luck xx
November 24th, 2009 at 1:01 pm
I am not a doctor but I do work in the medical field and I also deal with several chronic illnesses, including fibromyalgia and lupus. Unfortunately, when you are on that much pain medication for that long of a time, your body will become immune to it and they will not work any longer. My best suggestion to you would be to either go to a pain clinic or do what I do: try a naturopathic doctor. I was so sick and tired of being on medications that gave me more symptoms…I just couldn’t even function. So I went to see a naturopath who put me on a regimen of vitamins and minerals and I’ve been able to come off of all my medications. It’s amazing! I feel so much better! Please check out my blog: http://chronicsunshine.com It’s about dealing with chronic illness and I have my doctor’s information on there as well as other relevant information. Hope this helps! Wish you the best!
November 24th, 2009 at 1:01 pm
Not a doctor sorry but do about immune problems and pain plus anxiety and i really feel for you. To me it seems that you’re taking quite high doses of these pills and feel that the diazepan and the temazipan could be working against each other, If your on morphine then you really should be watched carefully and your painkillers closely monitored. For the thyroid again this needs to be watched and the endrometeritus should be able to be dealt with better. I know you say you’ve tried natural remedies have you tried aloe vera gel and drink enhancer the drink will help the stomache and the gel helps with some of the pain relief when applied. I would also ask for more blood tests and a second opinion you shouldn’t put up with this. Take care
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