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Has anyone got phantom toothache, chronic facial pain?

Posted in Contributors

I want to hear from people with diagnosed or undiagnosed facial pain at donohue100@hotmail.com for messenger or pauldonohue@ymail.com email.

I suffered from chronic facial pain for three years and it destroyed my life. I was told I would have to just live with it. My symptoms matched an illness called neualgia inducing cavaitational osteosis but non of my dentists even believed this illness existed and laughed at me for trying a self diagnosis. Three years after this I found a dentist with a cavitat scanner who found I had NICO as i had told the dentist years ago. The dead bone was removed and all is well. Problem is this illness does not show on xray or cat scan.

I want to know how many people out there are needlessly suffering and how I can do more to convince people that NICO is reality not just a fictitious illness.
nothing to do with sinus
it is effecting the nerves the whole are is like rotten bone so the nerves are effected.

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Posted: October 24th, 2009 at 1:01 pm | Print This Post Print This Post

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22 Responses to “Has anyone got phantom toothache, chronic facial pain?”

  1. Angela M Says:

    This actually sounds more like sinus blockage. My mate spent many years visiting her dentist with incredible toothache, only to discover that she had blocked sinuses. One trip to the doc, confirmed this and she has been pain free ever since she got a decongestant…

  2. Michelle. Says:

    thought neuralgia was an illness effecting the nerves?

  3. STEWART R Says:

    I suffer from trigeminal nerve neuralgia in both sides of my face/teeth.No painkiller touched it,not even morphine which I take for another problem,In the end the only drug that cured it was gabapentin,worked overnight and never had it since,i also suffered allot from sinus trouble,not anymore as I also use a decongestant Flixonase which works well.

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